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I would say to families, not to lose hope because I think we are in a position now to make a real difference to the lives of patients and the lives of families.

Jeannie Lee, MD, PhD

FRAXA Investigator

Harvard Medical School

Massachusetts General Hospital

About Making A Donation 

This website is devoted to telling the story of Patrick's PALS and FRAXA in hopes of gaining your support.  Raising awareness of Fragile X syndrome (FXS), the most common inherited cause of autism and intellectual disabilities worldwide, has always been priority one for us.  FRAXA’s mission, to find effective treatments and ultimately a cure for Fragile X syndrome, requires us to include a second priority - raising money.  FRAXA directly funds research grants and fellowships at top universities around the world and prioritizes the funding of Fragile X clinical trials.

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What will a cure for Fragile X look like? Will it be a daily pill, a weekly protein injection, or a one-time gene therapy infusion? Will it be combinations of medicines, tailored to each individual? The answer is probably all of the above. The cure for Fragile X isn’t a pipe dream. It’s a process, and FRAXA is right in the thick of it.  FRAXA Research Foundation is working tirelessly to deliver effective treatments and ultimately a cure for Fragile X syndrome!

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FRAXA recognizes the responsibility that comes with your contribution and is proud to be continually recognized as one of the most reliable stewards of donor gifts. We earn the highest marks possible from major nonprofit rating agencies. All our staff and board members are parents whose children live with Fragile X syndrome. FRAXA is a 501(c)(3) non-profit organization.  Their employer identification number is:  04-3222167

A donation to Patrick's PALS is a donation to FRAXA Research Foundation.  100% of donations made to PALS goes directly to FRAXA.  Patrick's PALS is proud to have raised over $2.5 million to  

If you are interested in making an online donation at this time, and to ensure the highest level of security, we ask that you click on the DONATE button below  By doing so, you will be redirected to FRAXA.org where you can make a secure donation, quickly and easily.

Thank you!

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